Pain and suffering. When is too much too much?

I would like discuss about when and how much is too much pain? I suffer everyday from this disease and also severe chronic fatigue as well. There are days when I can't even get into the shower to wash my hair. When are we ever going to get real relief besides from medications that are originally used for other medical ailments?. Living with pain has to be one of the worst things in the world especially when other's can't seem to understand it becuase we often "don't look the part" or don't look like there's anything wrong with us.